Posts

Showing posts from February, 2016

Dr. Marnie Rose Event. 2/24/2016

Image
Ok, very rarely do I post so often, but last night Mom and I attended an event hosted by the Dr. Marnie Rose Foundation, and I felt as though I wanted to share all the amazing things the foundation is doing for so many! After Dad's MRI in October appeared to show "enhancement" (indicating tumor growth), I quickly started looking at other options. One of those being Optune ( http://www.optune.com/ ). It's a device worn on the head of the patient, which has shown such positive impact on survival and quality of life for patients with recurrent glioblastoma (and recently newly diagnosed glioblastoma patients). I found a doctor at Scott & White in Temple that has many patients on this device, I've researched him (Harvard Medical School isn't too bad), and I knew that's the guy I wanted to see next- IF Dad had another bad MRI.  And would you guess- he was there last night! I immediately recognized him and knew I had to talk to him about Dad's case and ha...

A Girl For The Glenz Family. Dad Update 2/23/2016

Image
This week starts another round of chemotherapy and Avastin- oh how Dad hates these weeks, and I can't say I blame him too much.  From the taste of the pills that Dad has to take, to the stomach issues he continues to have during the week, the extreme fatigue and, not to mention, another trip to College Station for his IV treatment- it's an exhausting week for Dad. But, our family is all on a little bit of a high as we found out just this weekend that the second grandchild to be welcomed to the Glenz family will be a... GIRL! We are all so incredibly thrilled to welcome this sweet little girl into our family and love her unconditionally. I think Dad has the whole "raising a girl" thing down by now.  We've been feeling so much love and support lately through Dad's cancer battle, as we now have 51 members on our team 'BTHO Brain Cancer- Lar's Fight' and we've raised almost $1,400! Our third trip to 'Run For The Rose' looks like it will be ...

Why I Run For The Rose.

Image
As our 3rd trip to 'Run For The Rose' approaches, I wanted to share the reason why I'm so incredibly passionate about the 'Run For The Rose' 5k- which supports the Dr. Marnie Rose Foundation and brain cancer research in Houston. And it's pretty simple. Because I want to change something that brain cancer patients and families hear after a diagnosis. I want to change the prognosis.  "For adults diagnosed with Glioblastoma, treated with temozolamide (chemotherapy) and radiation therapy, the median survival is 14.6 months, and two year survival is 30%." I remember hearing those statistics as we learned what type of tumor Dad was fighting against, and I remember thinking 14.6 months just isn't long enough. 14.6 months was not enough time.  And thankfully, through Dad's amazing strength, faith and fight- along with the countless number of people praying for us, and our amazing doctor who continues to provide the best possible care- we are 28 months ...

Stable. Dad Update 2/10/2016

Image
Today we went in for another MRI report, and once again, my mind was racing with trying to predict what the MRI would show. My mind was trying to prepare for every possible outcome and what next treatment option I wanted to ask about. My mind was so focused on the 'what if', and my body was consumed with anxiety over these test results...and then we received the news... Stable. My body immediately felt like it was 10 lbs lighter- the weight of the anxiety and fear was gone- and all I wanted to do was celebrate, smile and take in the moment of pure joy that everyone was experiencing.  We are 28 months post-diagnosis and the MRI days do not get easier. The chemo weeks have without a doubt not been any easier. And the Avastin treatments still feel like they take forever. But all of these things have been part of our cancer journey- just one small chapter in this amazing life- and it's all helped us put life in perspective and enjoy the truly little things in life.  The little ...