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Showing posts from April, 2014

May: Brain Cancer Awareness Month

May 1 is the start of Brain Cancer Awareness Month, a month which helps recognize Dad's fight and the fight of so many others- a fight that is recognized by a ribbon and the color of Gray, a fight that I am so proud to be part of.  Brain Cancer is extremely underfunded and under recognized, something that I so badly want to change. When Dad was diagnosed I was in shock, because I honestly had never heard of someone that had Brain Cancer- but it didn't take long to find others fighting this battle, and other families who knew how difficult the battle against brain cancer can be.  I remember the day I found the Dr. Marnie Rose Foundation, and I remember the day I realized that regardless of Dad's fight, we were helping to find a cure- a cure that is so badly needed. This year was our first trip to 'Run For The Rose', a 5k supporting the Dr. Marnie Rose Foundation, and during our first trip we were able to donate over $10,000. It was such an overwhelming experience and...

Dad Update 4/28/2014

Weddings seem to be a bit bitter sweet to me now. A big part of me is so excited for my friends as they marry the man of their dreams, a big part of me is so happy to be part of such a huge event in their life, and a big part of me has an amazing time celebrating with others. But there is a little part of me, a little part of me that feels sad. It's hard for someone who's Dad is diagnosed with a type of cancer that is so aggressive, a type of cancer that (statistically) is just horrible, it's just hard to watch so many Father-Daughter moments that my other friends experience, and I fear I won't be able to. I don't want pity, I don't want anyone to feel sorry for me at weddings or for anyone to feel sorry for me (or my family) at all- it's just a constant thought for me, a constant thought that makes me realize how precious life truly is. And although I'm not sure of the future, I do know this- I've been given a gift. I've been given this gift of ...

Sunday Is Coming: Dad Update 4/23/2014

Sunday's sermon at church was absolutely perfect for my family, the title: 'Sunday Is Coming'. Our Pastor explained how horrible of a day Good Friday was for Jesus, and how many of us experience our own personal 'Good Fridays' in life. But just as Jesus experienced his Good Friday, he also experience Easter Sunday- the day of Resurrection, a day of celebration.  The same God that gives us our own 'Good Fridays', is the same God that gives us our 'Easter Sundays'- Sunday is always coming.  Yesterday, Sunday came for our family. Dad's MRI noted no additional tumor growth, and the area of concern showed less contrast- all good news! The MRI also showed a slight bleed, but after reviewing the MRI with Dad's Neurosurgeon, Dad's Oncologist wasn't too concerned with the bleed. We are lucky to have two doctors who work so well together, and two doctors who are extremely cautious, so Dad will be having a CAT scan in 2 weeks to monitor the blee...

Dad Update 4/16/2014

It's difficult for me to explain everything that goes into caring for a loved one that has cancer, especially one you live with. I can't explain the constant care, love and worry you have for that person, or the constant paperwork, bills, and insurance issues you also have to deal with. It's something that can't be explained, nor can anyone truly understand until they too have gone through a similar experience. There are many people who may not truly understand our day to day battle and fight against cancer, but these people attempt to make any stressful moment disappear and be there for us when we need it most. For that- I truly thank you. And then there are some people who struggle to understand and question how others could be so understanding towards us, understanding in a sense that gives us an "advantage" to day to day tasks- to those people, I pray for you. I pray that you never have to experience some of the pain, stress and worry that my family and I ...

Run For The Rose Update- We've Reached $10,000!

I remember the day I came across the Dr. Marnie Rose Foundation, I remember the day I found 'Run For The Rose' - it was February 17, 2014 to be exact-  and I remember the day we had $775 donated to our team. I remember calling Mom over to the computer to make her see the people who had donated, and I remember saying that I couldn't believe we had raised that much money. It's amazing how far we've come since February 17, 2014.  Fast forward to March 30, 2014, it was race day and we had almost 50 people on our team who had signed up to run/walk, and even more who showed up to support Dad and cheer us on during our run. We flooded the course, and Reliant Park, with maroon shirts, which as an Aggie of course made me extremely proud, and Dad was able to share with us this special day. At that point we had raised over $9,000, and I was still in disbelief that so many people donated to such an amazing cause and so many people joined us that day. And now, fast forward again...

Dad Update 4/8/2014

The week post-chemo is always difficult, and this last week has been no exception. Dad isn't feeling good, he is extremely tired and having headaches- bad headaches. If I could trade places with him, I would do just about anything, anything to make his pain stop.  I was on the phone most of yesterday with different nurses trying to figure out what was causing these headaches and what we could do to fix them. You know, because as a non-medical person, I just assume everything can be fixed by some sort of medicine. We've known since Dad started his new treatment of Avastin that high blood pressure and headaches were a common side effect, so Mom and I have been monitoring his pain and blood pressure lately. It's almost comical for me to be calling a nurse to talk through blood pressure and pulse readings, because I literally have no idea what those numbers even mean- or what would be considered normal. There have been lots of sleepless nights and painful days for Dad, and we a...

The 6 Month Anniversary

Tomorrow will mark six months. Six months since I received a phone call from Mom telling me to rush home, six months since I saw Dad on a stretcher with EMS by his side, six months since I saw blood-so much blood- on the floor in our kitchen, and six months since I waited in the ER to see Dad. I can't believe it's been six months.  I remember that day six months ago like it was yesterday. I remember fear and anxiety consuming my thoughts, as we weren't sure what caused the seizure or if Dad would know who we were when we were allowed to see him.  I remember walking into the room at the ER, I remember wondering if he would know me and wondering how I would react if he didn't.  His eyes were closed, and he was in a lot of pain, but I grabbed his hand and held on to his Aggie ring, and Mom asked him if he could open his eyes and see who was in the room. I started to talk to him, and asked him if he knew who I was- a question I never wanted to ever have to ask my Dad. He ne...

Our First Trip To Houston: 4/1

Well, our first trip to Houston reminds me again why I'm so happy Dad initially met with a doctor in College Station- the medical center is MUCH bigger and MUCH more confusing than I realized; Not to mention my blood pressure instantly rises when I step foot in any hospital or doctor's office, then add the stress of traffic, parking garages, figuring out what floor a doctor is on- I think it's even more clear that I'm a high stress individual. Many people have asked me, "Why did y'all not go to MD Anderson/Houston to begin with?" Well, first the treatment for this particular type of brain tumor would have been the same in College Station and at MD Anderson- 6 weeks radiation and chemotherapy. And to be honest, MD Anderson would have initially done a biopsy to determine what the tumor was, but our Neurosurgeon recommended we remove as much of the tumor as he could immediately- and thank God we did. Dad had a blood clot the size of the tumor when he went int...